Optimisation of community resources and systems of support to enhance the process of living with Parkinson’s Disease: a multi-sectoral intervention (OPTIM-PARK)
This project aims to establish the feasibility and acceptability of an intervention that will enhance the process of living with PD for patients and family-carers by building multisectoral care pathways, with a special focus on how to optimize the use of resources and systems of support in the community. The experience of living with PD is unique for each person, and influenced by different factors like previous life experiences, values and beliefs, social support and coping skills for patients and family carers, affecting their quality of life. The implementation of care pathways to improve the process of living with PD for patients and families requires a multisectoral and interdisciplinary action plan and important mobilisation of community resources if sustainable and integrated healthsupporting environments are to be delineated. This is a mixed method feasibility study with a sequential exploratory design with 3 phases: Phase 1. Literature reviews and initial qualitative data collection about the availability, use and networking of community resources and systems of support in each participating country. This will feed into the design of a user driven multisectoral intervention focused on the experience of living with PD
for patients and family-carers and optimisation of lay and professional community resources across Europe. Phases 2 and 3. A feasibility study to test the intervention in different European contexts, and qualitative and quantitative process evaluation and interpretation of the findings to delineate European care pathways. The transnational cooperation will benefit different stakeholders including professionals, user organizations, and politicians, to improve by learning from ‘good practice’ in a process of disseminating ideas, knowledge and experiences from one political setting to another.
- Samarbeid med University of Southampton, VIA-University College, Autonomous University of Madrid og Hospital Universitario de la Princesa
- Delt behandlingsansvar for personopplysninger
Prosjektbeskrivelse med vedlegg
Intern fremleggelse - Ja
Godkjent av: Ragnhild Hellesø
NSD - Ja 4 filer
REK - Ikke behov 1 fil
Komiteen vurderer at prosjektet, slik det er presentert i søknad og protokoll, ikke vil gi ny kunnskap om helse og sykdom. Prosjektet faller derfor utenfor REKs mandat etter helseforskningsloven, som forutsetter at formålet med prosjektet er å skaffe til veie "ny kunnskap om helse og sykdom", se lovens § 2 og § 4 bokstav a).