ANBEFALT LITTERATUR
Til forelesningene om:
SAMFUNNSVITENSKAPELIG PERSPEKTIV (kvalitativ forskningstradisjon)
Sykdomserfaringer
Charmaz, K. Stories of suffering: Subjective tales and research narratives. Qual Health Research 1999; 9: 362-382. http://qhr.sagepub.com/cgi/content/abstract/9/3/362
Lawton J. Lay experiences of health and illness: past research and future agendas. Sociol Health Illness 2003; 23-40. http://www.ncbi.nlm.nih.gov/pubmed/14498928
Lawton J, Rankin D, Peel E, Douglas M. Patient perception and experiences of transition in diabetes care: a longitudinal qualitative study. Health Expect 2009; 12: 138-148.http://www.ncbi.nlm.nih.gov/pubmed/19309488
Lutz BJ, Bowers BJ. Disability in everyday life. Qual Health Research 2005; 15: 1037-1054. http://www.ncbi.nlm.nih.gov/pubmed/16221878
Mengshoel AM. Living with a fluctuating illness of ankylosing spondylitis – a qualitative study. Arthritis & Rheumatism (Arthritis Care & Research ), 2008; 59 (10):143944. http://onlinelibrary.wiley.com/doi/10.1002/art.24103/pdf
Mengshoel AM, Norheim KB, Omdal R. Primary Sjögren’s syndrome –fatigue is an ever –present, fluctuating and uncontrollable lack of energy. Arthr Care and Research (revision submitted Oct 2013)
Nettleton S. "I just want permission to be ill": Towards a sociology of medically unexplained symptoms. Social Science Medicine 2006; 62: 1167-78. http://ac.els-cdn.com/S027795360500403X/1-s2.0-S027795360500403X-main.pdf?_tid=2fcb1b74-527a-11e3-b63f-00000aacb35f&acdnat=1385017229_ad6b7eed37d766a76d4c3c20202fb319
Paterson B.L. The shifting perspectives model of chronic illness. J Nursing Scholarship 2001; 33:21-26. http://www.ncbi.nlm.nih.gov/pubmed/11253576
Woolhead GM, Donovan JL, Dieppe PA. Outcomes of total knee replacement: a qualitative study. Rheumatol 2005; 44: 1032-37. http://www.ncbi.nlm.nih.gov/pubmed/15870149
Recoveryprosesser
Ahlsen B, Mengshoel AM, Solbrække KN. Shelter from the storm; men with chronic pain and narratives from the rehabilitation clinic. Patient Educ Couns. 2012 Aug 1. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/22858416
Hush JM, Refshauge K, Sullivan G, de Souza L, Maher CG, McAuly JH. Recovery, What does this mean to patients with low back pain? Arthr Rheum (Arthr Care Res) 2009; 67: 124-131. http://www.ncbi.nlm.nih.gov/pubmed/19116958
Kralik D, Koch T, Price K, Howard N. Chronic illness self-management: taking action to create order. J Clin Nursing 2004; 13: 259-267. http://www.ncbi.nlm.nih.gov/pubmed/14723679
Mengshoel AM, Heggen K. Recovery from fibromyalgia - previous patients' own experiences. Disabil Rehabil. 2004 ; 26:46-53. http://www.ncbi.nlm.nih.gov/pubmed/14660198
Ohlsson-Nevo E, Andershed B, Nilsson U, Anderzén-Carlsson A. Life is back to normal and yet not - partners' and patient's experiences of life of the first year after colorectal cancer surgery. J Clin Nursing 2011 (E-pub ahead of print). http://www.ncbi.nlm.nih.gov/pubmed/21883573
Richardson JC, Ong BN, Sim J. Remaking the future: contemplating a life with chronic widespread pain. Chron Illness 2006; 2: 209-218. http://www.ncbi.nlm.nih.gov/pubmed/17007697
Sallinen, M., Kukkurainen, M. L., Peltokallio, L., Mikkelsson, M., & Anderberg, U. M. Fatigue, worry, and fear--life events in the narratives of women with fibromyalgia. Health Care for Women International, 2011; 33(5), 473-494. http://www.tandfonline.com/doi/pdf/10.1080/07399332.2011.645967
Sanderson T, Calnan M, Richards P, Hewlett S. Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociol Health Illness 2011; 33: 618-33. http://www.ncbi.nlm.nih.gov/pubmed/21281314
BIOPSYKOSOSIALT PERSPEKTIV (kvantitativ kunnskapstradisjon)
Symptomer og livskvalitet
Borge CR, Wahl AK & Moum T (2010) Association of breathlessness with multiple symptoms in chronic obstructive pulmonary disease. Journal of Advanced Nursing. http://www.ncbi.nlm.nih.gov/pubmed/20825511
Borge CR, Wahl AK & Moum T. Pain and quality of life with chronic obstructive pulmonary disease. Heart and Lung 2011. 40, e90-101. http://www.ncbi.nlm.nih.gov/pubmed/21444112
Dodd M, Janson S, Facione N, Faucett J, Froelicher ES, Humphreys J, Lee K, Miaskowski C, Puntillo K, Rankin S & Taylor D (2001) Advancing the science of symptom management Journal of Advanced Nursing 33, 668-676. http://www.ncbi.nlm.nih.gov/pubmed/11298204
Ljosaa TM, Mork C, Stubhaug A, Moum T, Wahl AK. Skin pain and skin discomfort is associated with quality of life in patients with psoriasis. J Eur Acad Dermatol Venereol. 2012 Jan;26(1):29-35. doi: 10.1111/j.1468-3083.2011.04000.x.
Epub 2011; Mar 8. http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2021385220
Ljosaa TM, Rustoen T, Mörk C, Stubhaug A, Miaskowski C, Paul SM, Wahl AK. Skin pain and discomfort in psoriasis: an exploratory study of symptom prevalence and characteristics. Acta Derm Venereol. 2010;90(1):39-45.. http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2020107724
Wahl AK & Hanestad BR (2004) Måling av livskvalitet i klinisk praksis en innføring. Fagbokforl, Bergen.
Mestring
Antonovski A. (1987) Helsens Mysterium. Den salutogene modellen. 1. Utg. Gyldendal Norsk Forlag, Oslo. Kap 2.
Bonsaksen T, Lerdal A, Fagermoen S. Trajectories of illness percpetions in persons with chronic illness: An explorative longitudinal study. Journal of Health Psychology. 2013; Oct (E pub ahead of print). http://hpq.sagepub.com/content/early/2013/10/16/1359105313504235.long
Cameron LD, Leventhal H. (2003) The self-regulation of health and illness behaviour. Routledge Taylor & Francis Group, New York. Kap 3.
Langeland E, Riise Tm Hanestad BR, Nortvedt MW, Kristoffersen K, Wahl AK. The effect of salutogenic treatment principles on coping with mental health problems. A randomised controlled trial. Patient Educ Couns. 2006; Aug 62(2): 212-9. http://ac.els-cdn.com/S0738399105002259/1-s2.0-S0738399105002259-main.pdf?_tid=292df42e-5286-11e3-8f74-00000aacb35f&acdnat=1385022372_48e3b74f584687b83903a4472f9fc829
Larsen M, Hagen KB, Krogstad AL, Aas E., Wahl AK .Limited evidence of the effects of patient education and self-management interventions in psoriasis patients: A systematic review. 2013 (Epub ahead of print). http://www.ncbi.nlm.nih.gov/pubmed/24184041
Lazarus RS. Coping theory and research: Past, present, and future. Psychosom Medicine 1993; 55: 234-247. http://www.ncbi.nlm.nih.gov/pubmed/8346332
Nolte S, Osborne RH. A systematic review of outcomes of chronic disease self-management interventions. Quality Life Research. 2013 Sept 22 (7):1805-1816. http://download.springer.com/static/pdf/44/art%253A10.1007%252Fs11136-012-0302-8.pdf?auth66=1385197117_f7dbfe49bc36440b086d02dfb451271c&ext=.pdf
Urstad KH, Øyen O, Andersen MH, Moum T, Wahl AK. The effect of an educational intervention for renal recipients: a randomized controlled trial. Clin Transplant. 2012 May-Jun;26(3):E246-53. doi: 10.1111/j.1399-0012.2012.01666.x.
http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2022686948
Wahl AK, Rustoen T, Hanestad BR, Gjengedal E & Moum T. Self-efficacy, pulmonary function, perceived health and global quality of life of cystic fibrosis patients. Social indicators Research. 2005; 239-261. http://www.jstor.org/stable/27522201